Unconditional Love

Well, now you know the whole LVAD story and how I became the caregiver. I’m not sure how a lot of caregivers feel, but I know how I feel. I heard just about everything you can imagine, from you better take care of yourself, find time for yourself, make sure you have a back up plan, make sure you don’t get overwhelmed, make sure you get out and do things, make sure this and make sure of that and I appreciate all the advice and all the people telling me what I need to do but, I am me and I deal with life a little different than most people. I love taking care of my husband and when I’m needed I feel the best. This may seem crazy to most but it’s who I am and I’m not going to change who I am because everyone thinks they know what’s best for ME.

It has been three months since we have been home and I am learning more each day on how to stay focus and just live. Our days are filled with appointments to doctors, cardiac rehab and just trying to get my husband healthy enough to get on the transplant list. He has come a long way since our first day home. He can now stand up on his own, use the bathroom and actually walk more. This makes my day a little easier. He finally has adapted to the way “I” want to do things and knows that I need my “ME” time in the morning.

So if anyone is struggling with their new role, please know that it takes team work to keep your LOVE ONE alive. This LVAD is a life support on the inside and you have to be the support on the outside to keep it going. Adapt, overcome and learn to love your life. Everything else will fall into place.